The charity model of disability relies heavily on the palatability of those in the front and centre. (A lot of disability organisations and disability focused products and services also focus on palatability.)
This marginalises those who can’t perform things such as:
- wellness
- gratefulness
- prettiness
- skinniness
- whiteness
The effect of marginalising people who fall outside of palatability is that research efforts are centred on those who can achieve a socially acceptable outcome.
For example, charities will be ready to celebrate and showcase someone who can return to full time work, not someone who moves from bedbound to housebound.
If we remove palatability, we add in a layer of equity.
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[…] and professional bodies have failed us, and in Australia, still try to actively harm us. The palatability problem also comes in here, because as I mention in that post, people won’t celebrate someone moving […]