This page is a collection of my advocacy work. Partly so that on a bad day, I can feel like I’ve done something.
Mostly it’s my attempt at saving energy and time for others.
My words are never the only words you can use, and with brain fog, they’re never going to be the perfect words. I hope they lessen a workload for others who may find it hard to contribute otherwise.
You can read all posts regarding advocacy here. Or scroll around below for key posts, where I’ve tried to categorise them a bit further to make it easier for you find what you’re looking for.
I cannot take on individual advocacy work; please do not ask. Providing links and copies of my submissions so that you can use them to formulate your own responses is how I contribute to advocacy.
If you are an organisation, business, or government who wishes to work with me, please see my consulting business, Normal Systems. Along with the services listed on the website, I am happy to create custom packages. I do not work for free; please expect to pay standard consultancy rates to work with me.
Consultations / general advocacy
(This is the section to visit if you’re looking for something to help you put in a submission or reach out to a politician.)
- Advocacy – pre budget email (2026)
- Why means testing disability support is a bad idea
- Advocacy: foundational support via Emerge
- My 2023 submission to the long covid inquiry
- Targeted Foundational Supports Advocacy
- Tips on codesign for organisations
- NDIS support needs assessment process feedback survey
- 2025 Disability Discrimination Act Advocacy
- Advocacy to Greens re RACGP
- Asynchronous communication advocacy
- Advocacy – quick thank you email
- IDPWD 2024 Feedback
- The problem with long covid and ME/CFS research
Bureaucracy / systems
- Adjustments capitalism hates
- Needing supports vs receiving supports
- “It’s easier to call…”
- Chasms
- You need to not suck
- Money is a support
- The problem I have with self advocacy
- Storm season disability issues
- The state will take care of that
- If we’re a “burden” why won’t you help us?
- Stop shuffling, start designing
- Is there still an opportunity to do foundational supports well?
- My needs are not wrong, your service is wrong
- The disability service isn’t for disabilities
- 2025 Disability Supports: an attempt at QLD state government supports
- Unsupportive disability supports
- Not disabled enough
- Empower Does Not Equal Outsource
- When Does CoDesign Become Consulting?
Employment
- Pay for disability consulting
- Pay disabled people more because disability is expensive
- Fix your skill deficit
- How many degrees does it take to overcome ableism?
- Timing is a hell of a thing
- A shitty wish forced upon me
- Certifying employers as disability confident
- Capitalism + hyperfocus
- A shitty wish forced upon me
- Three out of three
- Ugh, it’s that time again
- Work for yourself, it’s like SO easy
- MECFS, work, and death
- One problem with “reasonable” accomodations
- Disabled? Work in disability!
- Disclosing your disability at work
- The performative parts of work
- What if I don’t want to work anymore?
- Corporate Inclusion
Attitudes towards disability
- Ugh, the trauma + chronic illness types
- Discussions about community have been hard to read
- I’m not here for the comfort of ableds
- The palatability problem
- What people really want with inclusivity
Personal philosophies/further reading
- Why I won’t do media for chronic illness
- Can a person be wrong when talking about their disability?
- Advocacy has to include loss?
- Quiet advocacy is still advocacy
- A collection of my current thoughts about disability
- Respect does not require understanding
- Fuck You, I’m a Greedy Bother
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