Recently in the news, a person suggested means testing disability supports. This is a bad idea, and I’m going to share some of the reasons why in this post. Feel free to add your own in the comments. Why means testing disability support is a bad idea Costs Disability is expensive. It costs […]
Advocacy
MECFS, work, and death
These are some thoughts I shared elsewhere online after seeing a post about how people with severe ME die when they become homeless. A lot of the time MECFS groups will tell you to quit your job. I get where they’re coming from, but it’s not an accurate representation of reality. I can’t get […]
“It’s easier to call…”
It’s time, my fellow humans. It’s time to acknowledge that easier just means more convenient for you. The prevalence of synchronous communication is becoming an issue for me. People need to stop treating asynchronous conversation needs as second class citizens. This is most obvious in a customer service context, where asynchronous needs are met […]
Chasms
I feel these chasms often and don’t feel like they are talked about much. The chasm of disability vs chronic illness. The chasm of always having had support vs never having had support. The chasm of a condition that can be supported vs one that can’t. The chasm of a researched condition vs an […]
My 2023 submission to the long covid inquiry
I’m planning to document and collate more of my advocacy on this site. Mostly so that others can use my words as a template to save them energy (though my words are never perfect nor are they the only words you can use). I’ll collect the links on one page eventually but for now they’ll […]
Tips on codesign for organisations
As you know, I have thoughts and feelings on codesign. But I came across this research by DANA and thought I’d share the points that felt most important. Important to me basically means the points that I’ve seen disability organisations fail continually to do, or do well. Most of my feelings are organistion -> individual […]