Yeah, job hunting. Endless hope is a ridiculous expectation to expect people to hold onto. That’s the funk of a day I’m in. Recently, I wrote about how I don’t stick to only remote jobs because most work I do can be done from home. I have to hope that it gets through to someone […]
Advocacy
Try this time, for me?
I once wrote about the expectation to always be trying. And I stand by what I wrote. But I’d like to go into a more fundamental issue on the topic of “trying”. The people (including disabled organisations, governments who assess us for benefits & supports etc) who don’t understand that A disability cannot […]
When they announced cuts to the NDIS
When they announced cuts to the NDIS at the National Press Club, I was live whatever-not-tweeting-but-posting-on-bluesky is called. Sorry, my brain still calls things live tweeting because that was a heyday name/action in my brain. Anyway, I hate how things disappear and are hard to find on social media when you want to relate to […]
Disability supports in Australia make me want to scream
I’ve written about my attempt to get non-NDIS supports. In 2024, in 2025, then the complaint I lodged… I’ve written about how Foundational Supports could be done well if they tried. For even more reading, check out my advocacy page. I’ve also written to disability organisations (not published or shared on my website […]
Ugh, the trauma + chronic illness types
Yeah, I can’t stand them. The trauma gave you chronic illness types. Look, logically I’m sure there could be a connection between trauma and chronic illness. You can find an connection anywhere with enough funding for research. And after all, these things all happen within your body. It’s not really the possibility of a […]
Can a person be wrong when talking about their disability?
No. But also, kind of yes. Broadly, the way you experience it is the correct way to explain it. However, it is a higher quality explanation when the person has some understanding of things like models of disability, of human rights, and has worked on their internalised ableism. The explanations are […]
Advocacy – pre budget email
Today I was reading the news when I saw politicians claim the federal budget isn’t set in stone yet. So I figured, why not email a relevant minister and tell them what I’m expecting. How their behaviour hasn’t been up to standard recently. It’s not my best work, because the past month has been a […]
I’ve lost respect for community
I’ve lost respect for community. Recently a friend suggested a way to make a personal project into a community project. Their suggestion was valid and logical. It was my own suggestion that surprised me. I felt a large recoil at the thought. This feeling of recoil has been swirling while I thought about things like […]
Certifying employers as disability confident
Certifying employers as disability confident (or accessible, or whatever the current buzzwords are) has never been something I support. In my experience, it turns into a vanity metric where the employer is centred, not the disabled person. What I’ve found is that when a person or business has done a disability awareness course, they […]
Capitalism + hyperfocus
I was doing a survey on ADHD late last year and one question asked if challenges with attention had any positives. My reply: Hyperfocus can be seen as a positive in certain capitalistic conditions. But it is not financially compensated appropriately. It is also effectively contraindicated with my other condition (ME/CFS) where cognitive […]