Over the past few years I’ve shared links and resources where I can. I wanted to collect them all in one place to save some energy for those who need it. Some of these I’ve found, some I’ve saved from wikis, the work of others etc.
I have NOT read all of these, I am not well enough to do that.
I am just trying to do something. This will never be perfect. Literally, do you own reading (and yeah I realise that’s a super shitty thing to say in the context of this condition). I wish I could do more, an annotated summary for each but that’s not in my capacity. Some links I’ve gathered are all I can do. Regardless, I hope they help lessen a load somewhat. This page includes links to covid for covid induced MECFS.
I’m not a doctor. This isn’t advice.
Open to suggestions and feedback – please via email (normalnessblog AT gmail DOT com) not via comments or social media etc as those are too hard to manage, emails I can find again. No guarantee of how quickly I can respond or update.
MECFS 101 information
Diagnostic criteria
Pacing
Don’t do GET
Symptom management
Crash survival guide
2 Day CPET
Rebuttal of lockdowns causing increase of viruses
Husbands leaving sick wives
Manual for recovery
Cerebral blood flow
Guanfacine and NAC for brain fog
How long PEM lasts
Covid spreads asymptomatically
Covid is airborne
N95 protection
Reinfection leads to long covid
Long covid
MECFS post covid
Infection onset of MECFS
Risk factors for MECFS
Air purifiers in schools to reduce transmission
MECFS is not psychosomatic
Accomodations / adjustments for work / school
Physiotherapy
Neuroinflammation
If this was helpful and you are in a secure financial position, consider supporting me.