I was reading an article on NDIS changes when a sidebar article drew my attention. It was titled No, work from home culture is not ‘career suicide’. Obviously, this is of interest to me as a disabled person who is a) looking for work and b) can only work from home. Unusually for most […]
Work
- This is my life
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The benefit of becoming disabled later in life
A while ago I was chatting in a chronic illness forum and someone was being told they had it easier becoming disabled as a teen or young adult. I didn’t agree at all. Before becoming housebound, I had a pile of stuff behind me and life experience … makes experiences easier. I can […]
Certifying employers as disability confident
Certifying employers as disability confident (or accessible, or whatever the current buzzwords are) has never been something I support. In my experience, it turns into a vanity metric where the employer is centred, not the disabled person. What I’ve found is that when a person or business has done a disability awareness course, they […]
Capitalism + hyperfocus
I was doing a survey on ADHD late last year and one question asked if challenges with attention had any positives. My reply: Hyperfocus can be seen as a positive in certain capitalistic conditions. But it is not financially compensated appropriately. It is also effectively contraindicated with my other condition (ME/CFS) where cognitive […]
Three out of three
For years now I have struggled to get three out of three – the right work, the right pay, the right location. As my MECFS has gotten worse (beyond the point where working is wise) it now costs me so deeply to work that not getting three out of three makes me angry. It […]
Timing is a hell of a thing
I recently made an off-hand post about wanting to get some book editing done, but weather got in my way and made me flare. Sucks, but that’s what happens with unpredictable chronic illnesses. What I was working on that day was a book about what it was like to job hunt as a completely […]
Ugh, it’s that time again
Today I am sad. I’ve had a feeling for a while that there won’t be good news at work this year with regards to funding (it’s probably all public knowledge technically but I don’t view it as my place to share the specifics, so I’m not going into detail about why I feel this […]
Work for yourself, it’s like SO easy
This article on The Conversation mentions disability, but only insofar as it’s a protected status; it’s technically illegal to discriminate against us. I say technically because we all know how common it is to be on the receiving end of discrimination in the workplace. A common refrain will be that you should work for […]
MECFS, work, and death
These are some thoughts I shared elsewhere online after seeing a post about how people with severe ME die when they become homeless. A lot of the time MECFS groups will tell you to quit your job. I get where they’re coming from, but it’s not an accurate representation of reality. I can’t get […]
- This is my life
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Work can be just work
People are very all or nothing about work and I am just… not that way inclined. Colleagues have to be friends! Nope. Colleagues are colleagues. There’s nothing wrong with being a colleague. I have a great deal of respect for many people I’ve worked with and for some, I’d drop everything (disability permitting) to […]