I recently became concerned about plans for Targeted Foundational Supports. This is not a new concern (I’ve outlined things in the past), just a more specific one. This concern was mainly raised through the application form for this focus group, because I read this as implying that Targeted Foundational Supports may be ONLY Thriving […]
Health
Money is a support
A note I sent myself in June 2025… On a bad day like today, appointments in the morning, my partner unable to move and can’t care for me, money would be the ideal support to give me a healthy, prepared lunch. But no one wants to talk about independence in this way. They […]
Anger is a part of this
A note I sent myself in April 2025: I’ve now reached the stage of my flare where I’m angry. Angry that I will go back to work tomorrow and haven’t had a weekend because I was too crashed to even do a tiny bit of one of the few things I can still […]
The real cost of going to see the doctor
An article was published today on the cost of getting healthcare in Australia. The variable missing was that this person still had ways to wrangle money for these visits. Not easy, I’m sure, but there are people with fewer resources. So I thought I’d write a diary of needing healthcare from the perspective of […]
The chair job
I realise “The chair job” sounds like some kind of heist movie but I didn’t know what else to name this blog post. Sorry if you were expecting a heist. A few weeks ago I saw a job ad that required you to own an ergonomic chair and while I have a ton of […]
How public health shapes “reasonable”
A personal Facebook post of mine from 6th May 2021: I know some people like that NSW doesn’t do lockdowns, and my personal dislike of their Premier aside, what I wish people understood about the value of lockdowns is that it protects at risk people. If the government says it’s safe, the at risk […]
Work isn’t everything
People are so into “work is the only valid way of humaning” that they overlook how much jobs can disable you / make things worse / put you into constant flares and so on. It can be healthier for some people to not work. Work has been bad for me in the past. […]
Assing Upmtions
Assumptions, that’s what this headline is saying. I just really wanted to focus on the ASS bit because this is all about a divide which I think is bullshit. The divide between “disabled” and “disabling health condition” has been growing and I feel like it’s about to escalate wildly. There are so many […]
Who gets to talk about energy?
I’m beginning to really dislike it when famous or rich people talk about saving energy, because when those of us who are genuinely limited in energy talk about it, we don’t receive the praise the famous and rich receive. When I talk about things like needing a trip out of the house to go […]
The media only shares best case ME/CFS stories
In April 2025 a story about ME/CFS was in the mainstream media. You can read it here. It was a good, relatable story. One quote that stuck with me was “a graceless manager who refused her request to work some days from home because it would be ‘unfair’ to her team”. Because OOOOOF […]