While writing the actions speak louder than words post I had a thought. When your lack of spoons causes you to lose parts of your identity, then you end up needing to spend spoons to work out what your identity is now… Losing so much energy (and therefore functional levels) in the past few […]
This is my life
Actions Speak Louder Than Words… Or do they?
What happens when you lose the ability to take action? Are you denigrating words? It’s much like eons ago when I saw supposedly wonderful disability activists shitting on people who couldn’t go to in person protests. Apparently using “only” a keyboard is “slacktivism”. (This was a long time ago when I wrongly assumed all […]
Who Is A Writer?
On my now defunct Patreon, years ago I wrote a post about who GETS to be seen as a writer. Frankly, at the time, I was cranky. Some people were collaborating on a project and I didn’t view one of them as a writer. Yeah, that was a dick move of me, because who […]
Respect does not require understanding
This has become a theme for me. For me, it is in the context of my needs. My chronic health conditions disable me and I have needs due to that. Fatigue is misunderstood not only by society but by lots of ignorant people in medical professions who won’t (I refuse to believe can’t is […]
Starting 2024
Starting 2024 My phrase for 2024: I’m not here for your bullshit. My words for 2024: Fuck. Off. (Seriously. I did not tell enough people to fuck off in 2023 and SO MANY deserved to hear it.) I’m not over 2023 just because a ticky box has moved on a squee […]
Oh, that’s terrible!
I’m tired of people centering their reactions to my “stuff” when I’m the one who has to live through the shitty parts & they don’t. This is what I got when I was job hunting in 2023. I had people telling me how awful it was that I was housebound. It wasn’t about me, […]
Randoms 28
Some people don’t know that aviation is a special interest of mine. I find air crash reports relaxing to read. I can explain that another time. I can be in the middle of typing or talking and all the ideas fall out of my skull, gone forever. You probably see me do this most […]
- This is my life
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Be good to the cash flow of others
Small steps can be a saving grace for people. If you’re in a position to positively impact the cash flow of others, do it. It’s rare and it’s a good thing to do. Eons ago in my mining and construction industry days, I had corporate credit cards. I’m pretty sure I had two, though […]
The problem with long covid and ME/CFS research
I started sharing some ad-hoc thoughts online after filling in a Long Covid research survey. Then I thought I might collect all my random social media thoughts on this topic into a blog post. The trigger for thinking about this was a LC survey asking if I will participate in blood samples… I ticked […]
- This is my life
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Corporate Inclusion
Corporate inclusion can be summed up as… of course we’ll include you, as long as we don’t have to: do anything be reminded of your needs and as long as we can: trot you out for photos when we need good PR If you like my posts, consider supporting me.