I’ve seen a few people share about this on social media, which means I now feel that solidarity exists. (Also, don’t assume no one sees your posts. Likes and comments and vanity metrics don’t measure the impact you have.) Queues are one of my biggest flare triggers. It’s also not socially acceptable […]
Author: Vanessa Smith
The new internet rule
I have a new rule for the internet. However, applying the rule may also cause the end of the internet. When someone asks a question, you are not permitted to reply if your answer is the same as the first answer on Google. There is another variant of this I could add: If […]
The internet is my only home now
The thing about becoming mostly housebound and struggling with synchronous communication is that it basically leaves social media as the place for my communication. I curate my social media HARD. I block, mute, unfollow very easily. It’s bullshit that you have to allow assholes in to avoid it being an echo chamber. And as […]
Clarity
I saw someone once saying that a rare benefit of ME/CFS is that they had to get really clear about what they want. That hasn’t happened for me. I still want a shitload of stuff. I wonder if this happens to everyone? Does everyone with ME/CFS get really clear on what they want? Does […]
Another spoon use
While writing the actions speak louder than words post I had a thought. When your lack of spoons causes you to lose parts of your identity, then you end up needing to spend spoons to work out what your identity is now… Losing so much energy (and therefore functional levels) in the past few […]
Actions Speak Louder Than Words… Or do they?
What happens when you lose the ability to take action? Are you denigrating words? It’s much like eons ago when I saw supposedly wonderful disability activists shitting on people who couldn’t go to in person protests. Apparently using “only” a keyboard is “slacktivism”. (This was a long time ago when I wrongly assumed all […]
Who Is A Writer?
On my now defunct Patreon, years ago I wrote a post about who GETS to be seen as a writer. Frankly, at the time, I was cranky. Some people were collaborating on a project and I didn’t view one of them as a writer. Yeah, that was a dick move of me, because who […]
Respect does not require understanding
This has become a theme for me. For me, it is in the context of my needs. My chronic health conditions disable me and I have needs due to that. Fatigue is misunderstood not only by society but by lots of ignorant people in medical professions who won’t (I refuse to believe can’t is […]
Starting 2024
Starting 2024 My phrase for 2024: I’m not here for your bullshit. My words for 2024: Fuck. Off. (Seriously. I did not tell enough people to fuck off in 2023 and SO MANY deserved to hear it.) I’m not over 2023 just because a ticky box has moved on a squee […]
Oh, that’s terrible!
I’m tired of people centering their reactions to my “stuff” when I’m the one who has to live through the shitty parts & they don’t. This is what I got when I was job hunting in 2023. I had people telling me how awful it was that I was housebound. It wasn’t about me, […]